BIOETHICS - BIOethics Exploring Trajectories of Health Innovations Challenging Society

Equipe constitutive de l'UMR1027, unité mixte INSERM - Université Toulouse III Paul Sabatier
 

2020
  • Fellmann F, Rial-Sebbag E, Patch C, Hentze S, Stefandottir V, Mendes Á, van El CG, Cornel MC, Forzano F; Public and Professional Committee (PPPC) of the European Society of Human Genetics (ESHG). ESHG PPPC Comments on postmortem use of genetic data for research purposes. Eur J Hum Genet. 2020 Feb;28(2):144-146. doi: 10.1038/s41431-019-0525-z.
     
  • Mom T, Gardini B, Rial-Sebbag E, Fraysse B; French Association of Global Outreach in Otolaryngology Head, Neck Surgery (AEGOF). The humanitarian and outreach ethics charter in ENT. Ethics at the heart of missions. Eur Ann Otorhinolaryngol Head Neck Dis. 2020 Aug 15:S1879-7296(20)30183-6. doi: 10.1016/j.anorl.2020.08.002.
     
  • van der Wouden CH, Böhringer S, Cecchin E, Cheung KC, Dávila-Fajardo CL, Deneer VHM, Dolžan V, Ingelman-Sundberg M, Jönsson S, Karlsson MO, Kriek M, Mitropoulou C, Patrinos GP, Pirmohamed M, Rial-Sebbag E, Samwald M, Schwab M, Steinberger D, Stingl J, Sunder-Plassmann G, Toffoli G, Turner RM, van Rhenen MH, van Zwet E, Swen JJ, Guchelaar HJ; Ubiquitous Pharmacogenomics Consortium. Generating evidence for precision medicine: considerations made by the Ubiquitous Pharmacogenomics Consortium when designing and operationalizing the PREPARE study. Pharmacogenet Genomics. 2020 Aug;30(6):131-144. doi: 10.1097/FPC.0000000000000405.
2019
  • Pasquier L, Isidor B, Rial-Sebbag E, Odent S, Minguet G, Moutel G. Population genetic screening: current issues in a European country. Eur J Hum Genet. 2019 Sep;27(9):1321-1323. doi: 10.1038/s41431-019-0425-2.
     
  • Carrieri D, Howard HC, Benjamin C, Clarke AJ, Dheensa S, Doheny S, Hawkins N, Halbersma-Konings TF, Jackson L, Kayserili H, Kelly SE, Lucassen AM, Mendes Á, Rial-Sebbag E, Stefánsdóttir V, Turnpenny PD, van El CG, van Langen IM, Cornel MC, Forzano F; European Society of Human Genetics. Recontacting patients in clinical genetics services: recommendations of the European Society of Human Genetics. Eur J Hum Genet. 2019 Feb;27(2):169-18 doi: 10.1038/s41431-018-0285-1.
     
  • Fellmann F, van El CG, Charron P, Michaud K, Howard HC, Boers SN, Clarke AJ, Duguet AM, Forzano F, Kauferstein S, Kayserili H, Lucassen A, Mendes Á, Patch C, Radojkovic D, Rial-Sebbag E, Sheppard MN, Tassé AM, Temel SG, Sajantila A, Basso C, Wilde AAM, Cornel MC; on behalf of European Society of Human Genetics, European Council of Legal Medicine, European Society of Cardiology working group on myocardial and pericardial diseases, European Reference Network for rare, low prevalence and complex diseases of the heart (ERN GUARD-Heart), Association for European Cardiovascular Pathology. European recommendations integrating genetic testing into multidisciplinary management of sudden cardiac death. Eur J Hum Genet. 2019 Dec;27(12):1763-177 doi: 10.1038/s41431-019-0445-y.
     
  • Mandelker D, Donoghue MTA, Talukdar S, Bandlamudi C, Srinivasan P, Vivek M, Jezdic S, Hanson H, Snape K, Kulkarni A, Hawkes L, Douillard JY, Wallace SE, Rial-Sebbag E, Meric-Bersntam F, George A, Chubb D, Loveday C, Ladanyi M, Berger MF, Taylor BS, Turnbull C. Germline-Focused Analysis of Tumour-Only Sequencing: Recommendations from the ESMO Precision Medicine Working Group. Ann Oncol. 2019 Aug 1;30(8):1221-1231. doi: 10.1093/annonc/mdz136.
     
  • Zawati MH, Chalmers D, Dallari SG, de Neiva Borba M, Pinkesz M, Joly Y, Chen H, Hartlev M, Leitsalu L, Soini S, Rial-Sebbag E, Hoppe N, Garani-Papadatos T, Vidalis P, Srinivas KR, Siegal G, Negri S, Hatanaka R, Al-Hussaini M, Al-Tabba' A, Motta-Murgía L, Moran LET, Hendriks A, Nnamuchi O, Isasi R, Krekora-Zajac D, Sadoun E, Ho C, Andanda P, Lee WB, Nicolás P, Mattsson T, Talanova V, Dosch A, Sprumont D, Fan CT, Hung TH, Nnamuchi O, Kaye J, Phillips A, Gowans H, Shah N, Hazel JW. Country Reports. J Law Med Ethics. 2019;47(4):582-704. doi:10.1177/1073110519897736.

Mise à jour novembre 2020